La dimensione spirituale nelle pratiche di cura del fine vita. Limiti da superare e modelli da implementare

Titolo Rivista SALUTE E SOCIETÀ
Autori/Curatori Barbara Sena, Enrico De Luca
Anno di pubblicazione 2024 Fascicolo 2024/1
Lingua Italiano Numero pagine 18 P. 83-100 Dimensione file 450 KB
DOI 10.3280/SES2024-001006
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più clicca qui

Qui sotto puoi vedere in anteprima la prima pagina di questo articolo.

Se questo articolo ti interessa, lo puoi acquistare (e scaricare in formato pdf) seguendo le facili indicazioni per acquistare il download credit. Acquista Download Credits per scaricare questo Articolo in formato PDF

Anteprima articolo

FrancoAngeli è membro della Publishers International Linking Association, Inc (PILA)associazione indipendente e non profit per facilitare (attraverso i servizi tecnologici implementati da CrossRef.org) l’accesso degli studiosi ai contenuti digitali nelle pubblicazioni professionali e scientifiche

Although, in recent years, the spiritual dimension has progressively evolved into a topic of interest to healthcare organizations and scholars, it still needs to become part of patient care practices. Palliative care has developed greater attention to spirituality, since this discipline also focuses on the patient’s psychological and existential needs, therefore through a holistic ap-proach not based exclusively on traditional medicine and the biomedical paradigm. The article examines, through a synthesis of existing international literature, the current state of spirituality in palliative care; therefore, it will highlight the challenges related to the implementation of shared and patient-centered spiritual practices by healthcare professionals. Furthermore, two hospice experiences, one in Thailand and the other in Italy, will be explored as possible mod-els to be developed in the future for an integrated approach to spiritual care in end-of-life man-agement.

Parole chiave:Spiritualità; religiosità; cure palliative; approccio biomedico; professionisti sanitari; hospice.

  1. Anke I. Liefbroer R., Ganzevoort R., and Olsman E. (2019). Addressing the spiritual domain in a plural society: what is the best mode of integrating spiritual care into healthcare?. Mental Health, Religion & Culture, 22(3): 244-260. DOI: 10.1080/13674676.2019.1590806
  2. Arrey A.E., Bilsen J., Lacor P., Deschepper R. (2016). Spirituality/Religiosity: A Cultural and Psychological Resource among Sub-Saharan African Migrant Women with HIV/AIDS in Belgium. PLoS One, 11(7): e0159488.
  3. Austin P., Macdonald J., and MacLeod R. (2018). Measuring spirituality and religiosity in clinical settings: a scoping review of available instruments. Religions, 9: 70.
  4. Balboni M. J., Balboni T. A. (2011). Spirituality and biomedicine: A history of harmony and discord. In: Peteet J. R., D’Ambra M. N., a cura di. The soul of medicine: spiritual perspectives and clinical practice. Baltimore: Johns Hopkins University Press.
  5. Balboni M.J., Sullivan A., Enzinger A.C., Epstein-Peterson Z.D., Tseng Y.D., Mitchell C., Niska J., Zollfrank A., VanderWeele T.J., and Balboni T.A. (2014). Nurse and physician barriers to spiritual care provision at the end of life. Journal of pain and symptom management, 48(3): 400-410.
  6. Batstone E., Bailey C., and Hallett N. (2020). Spiritual care provision to end-of-life patients: A systematic literature review. Journal of Clinical Nursing, 29: 3609–3624.
  7. Best M., Leget C., Goodhead A., and Paal P. (2020). An EAPC white paper on multi-disciplinary education for spiritual care in palliative care. BMC Palliative Care, 19: 1-10.
  8. Best M. C., Vivat B., and Gijsberts M.-J. (2023). Spiritual Care in Palliative Care. Religions, 14(3), 320.
  9. Borgo tutto è vita (2023). Hospice di meditazione. Testo disponibile al sito: https://borgotuttovita.it/hospice-di-meditazione/ (22/10/2023).
  10. Buddhaghosacariya S. (2019). Buddhadhamma: The laws of nature and their benefits to life. Bangkok: Buddhadhamma Foundation.
  11. Caldeira S., Timmins F. (2017). Implementing spiritual care interventions. Nursing Standard, 31(34):54-60.
  12. Chahrour W.H., Hvidt N.C., Hvidt E.A., and Viftrup D.T. (2021). Learning to care for the spirit of dying patients: the impact of spiritual care training in a hospice-setting. BMC palliative care, 20(1):115.
  13. Cherry M. J. (2019). Bioethics without God: The Transformation of Medicine within a Fully Secular Culture. Christian bioethics: Non-Ecumenical Studies in Medical Morality, 25(1): 1-16.
  14. Chirico F. (2016). Spiritual well-being in the 21st century: it is time to review the current WHO’s health definition. Journal of Health and Social Sciences, 1:11–16.
  15. Cruz J.P., Alquwez,N., and Balay‐odao E. (2022). Work engagement of nurses and the influence of spiritual climate of hospitals: A cross‐sectional study. Journal of nursing management, 30(1): 279-287.
  16. Davis A., Repar P., Wilson M., De Luca E., Doutrich D., and Thanasilp S. (2023). Transforming Nurse Self-Care Through Integration of Spirituality: Lessons From an International Collaboration in Palliative Care. Journal of Transcultural Nursing, 34(1): 91-99. DOI: 10.1177/1043659622113481
  17. Davoodvand S., Abbaszadeh A., and Ahmadi F. (2017). Spiritual development in Iranian nurses. Nursing ethics, 24(8): 936-949. DOI: 10.1177/096973301662977
  18. De Luca E., Wilson M., Davis A., Repar P., Doutrich D., and Thanasilp S. (2022). The Transformational Power of an Intercultural Research Team. In: Fatigante M., Zuchermaglio C. e Alby F., a cura di, Interculturality in Institutions: Symbols, Practices and Identities. Cham: Springer International Publishing, pp. 229-246.
  19. Fisher J. (2011). The Four Domains Model: Connecting Spirituality, Health and Well-being. Religions, 2:17-28.
  20. Freidson E. (1988). Profession of medicine. Chicago: University of Chicago Press.
  21. Galesi D., Martinelli M. (2017). Quando la morte rompe i tabù. L’approccio professionale degli operatori hospice ai malati terminali. Salute e Società, 3/2017:119-132.
  22. Gawande A. (2014). Being mortal: Medicine and what matters in the end. London: Macmillan.
  23. Hsiao Y.C., Chien L.Y., Wu L.Y., Chiang C.M., and Huang S. Y. (2010). Spiritual health, clinical practice stress, depressive tendency and health‐promoting behaviours among nursing students. Journal of advanced nursing, 66(7): 1612-1622.
  24. Hubbell S.L., Kauschinger E., and Oermann M. (2017). Development and Implementation of an Educational Module to Increase Nurses’ Comfort With Spiritual Care in an Inpatient Setting. Journal of continuing education in nursing, 48(8): 358–364. DOI: 10.3928/00220124-20170712-0
  25. ICN (2021). The ICN Code of Ethics for Nurses. (pp. 1-10). Geneva: ICN. Testo disponibile al sito: https://www.icn.ch/sites/default/files/2023-06/ICN_Code-of-Ethics_EN_Web.pdf (13/11/2023)
  26. Jaberi A., Momennasab M., Yektatalab S., Ebadi A., and Cheraghi M.A. (2019). Spiritual Health: A Concept Analysis. Journal of religion and health, 58(5), 1537–1560.
  27. Jobin G. (2020). Spirituality in the Biomedical World: Moving between Order and “Subversion”. Berlin: De Gruyter.
  28. Jones K.F., Paal P., Symons X., and Best M.C. (2021). The content, teaching methods and effectiveness of spiritual care training for healthcare professionals: A mixed-methods systematic review. Journal of Pain and Symptom Management, 62(3): e261-e278.
  29. Kruizinga R., Helmich E., Schilderman J.B., Scherer-Rath M., and van Laarhoven H. W. (2016). Professional identity at stake: a phenomenological analysis of spiritual counselors’ experiences working with a structured model to provide care to palliative cancer patients. Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer, 24(7): 3111–3118.
  30. McLouth L.E., Ford C.G., Pustejovsky J.E., Park C.L., Sherman A.C., Trevino K., and Salsman J. M. (2021). A systematic review and meta‐analysis of effects of psychosocial interventions on spiritual well‐being in adults with cancer. Psycho‐Oncology, 30(2): 147-158.
  31. Murgia C., Notarnicola I., Rocco G., and Stievano A. (2020). Spirituality in nursing: A concept analysis. Nursing Ethics, 27(5): 1327-1343. DOI: 10.1177/096973302090953
  32. NHS (2021). Ambitions for Palliative and End of Life Care: A national framework for local action 2021-2026. Testo disponibile al sito: https://www.england.nhs.uk/publication/ambitions-for-palliative-and-end-of-life-care-a-national-framework-for-local-action-2021-2026/ (22/10/2023)
  33. Nissen R.D., Viftrup D., and Hvidt N.C. (2021). The Process of Spiritual Care. Frontiers in psychology, 12: 674453.
  34. Nita M. (2019). “Spirituality” in Health Studies: Competing Spiritualities and the Elevated Status of Mindfulness. Journal of religion and health, 58(5):1605–1618.
  35. O’Brien M.R., Kinloch K., Groves K.E., and Jack B.A. (2019). Meeting patients’ spiritual needs during end‐of‐life care: A qualitative study of nurses’ and healthcare professionals’ perceptions of spiritual care training. Journal of Clinical Nursing, 28(1-2), 182-189.
  36. Peteet J. R., D’Ambra M. N. (2011). The soul of medicine: spiritual perspectives and clinical practice. Baltimore: Johns Hopkins University Press.
  37. Puchalski C.M., Vitillo R., Hull S.K., and Reller N. (2014). Improving the spiritual dimension of whole person care: reaching national and international consensus. Journal of palliative medicine, 17(6): 642-656.
  38. Puchalski C., Jafari N., Buller H., Haythorn T., Jacobs C., and Ferrell B. (2020). Interprofessional spiritual care education curriculum: A milestone toward the provision of spiritual care. Journal of Palliative Medicine, 23(6): 777-784.
  39. Rushton C.H., Batcheller J., Schroeder K., and Donohue P. (2015). Burnout and resilience among nurses practicing in high-intensity settings. American journal of critical care, 24(5): 412-420.
  40. Rykkje L., Søvik M. B., Ross L., McSherry W., Cone P., and Giske T. (2022). Educational interventions and strategies for spiritual care in nursing and healthcare students and staff: A scoping review. Journal of clinical nursing, 31(11-12): 1440-1464.
  41. Samuel G. (2006). Tibetan Medicine and Biomedicine: Epistemological Conflicts, Practical Solutions. Asian Medicine, 2: 72-85.
  42. Saunders D.C.M. (1967). The Management of Terminal Illness. London: Edward Arnold.
  43. Sena B., De Luca E. (2022). Managing the end of life in COVID patients. The role of palliative care in emergency departments during the pandemic. Frontiers in Sociology, 7, 1039003.
  44. Shim J.-M. (2016). The Relationship Between the Use of Complementary and Alternative Medicine and the Use of Biomedical Services: Evidence From East Asian Medical Systems. Asia Pacific Journal of Public Health, 28(1): 51–60. DOI: 10.1177/10105395156134
  45. SICP (2019). Core curriculum per l’assistenza spirituale in cure palliative. Testo disponibile al sito: https://www.sicp.it/aggiornamento/core-curriculum/2019/12/core-curriculum-per-lassistenza-spirituale-in-cure-palliative/ (22/10/2023)
  46. Sukcharoen P., Sakunpong N., and Sripa K. (2020). Spiritual dimension in palliative care from the perspective of Thai palliative caregivers. International journal of palliative nursing, 26(2): 70-74.
  47. Taylor E.J., Mamier I., Ricci-Allegra P., and Foith J. (2017). Self-reported frequency of nurse-provided spiritual care. Applied Nursing Research, 35: 30-35.
  48. Thanasilp S., Voraakhom K., Pisolayabutra P., Panriansaen R., Tantitrakul W., Akkaayagorn L. (2018). The Effect of a Dharma Creative Art Therapy Program Among Cancer Patients Receiving Palliative Care. Journal of Pain and Symptom Management, 56(6), e22-e23.
  49. Timmins F., Caldeira S. (2017). Assessing the spiritual needs of patients. Nursing Standard, 31(29): 47–53.
  50. Timmins F., Neill F. (2013). Teaching nursing students about spiritual care–A review of the literature. Nurse Education in Practice, 13(6): 499-505.
  51. Upasen R., Thanasilp S. (2020). Death acceptance from a Thai Buddhist perspective: A qualitative study. European Journal of Oncology Nursing, 49, 101833.
  52. Vincensi B. B. (2019). Interconnections: Spirituality, Spiritual Care, and Patient-Centered Care. Asia-Pacific journal of oncology nursing, 6(2): 104-110.
  53. Weathers E., McCarthy G., and Coffey A. (2016). Concept analysis of spirituality: An evolutionary approach. Nursing forum, 51(2): 79-96.
  54. World Health Organization (2020). Palliative Care. Testo disponibile al sito: https://www.who.int/news-room/fact-sheets/detail/palliative-care (7/11/2023).

Barbara Sena, Enrico De Luca, La dimensione spirituale nelle pratiche di cura del fine vita. Limiti da superare e modelli da implementare in "SALUTE E SOCIETÀ" 1/2024, pp 83-100, DOI: 10.3280/SES2024-001006